CC0 Spotlight: Personal Genome Project

The Personal Genome Project (PGP) aims to publish the complete genomes and medical records of several volunteers, in order to enable research into personalized medicine.

They are publishing the data using the CC0 waiver which means it is free from copyright.

Here’s an example of some data available from the PGP…

http://www.personalgenomes.org/public/1.html

The Personal Genome Project was launched by George Church who is also one of the first volunteers. I had the opportunity to correspond with him recently for help on my Set Free project. (see below)

Also, here’s a great article about George and what the PGP can do for our future.

http://www.wired.com/medtech/stemcells/magazine/16-08/ff_church

Would I be able to make a clone of George with the data released by the PGP?

Correspondence with George Church

Date: Mon, 16 Mar 2009 15:20:27 -0700
From: Jorel Pi
Subject: Personal Genome Project Participant Genetic and Trait Dataset
To: George Church

Hi George,

I’m trying to add the Personal Genome Project Participant Genetic and Trait Dataset to a list of notable works whose copyrights were waived by its creator. The list can be viewed here.

http://setfree.wik.is/

I was wondering if you knew whose decision it was to use the CC0 waiver to release the copyright of the work and if you knew the date the waiver was implemented.

Any help would be great. Thanks!

Jorel

From: George Church
Date: Mon, Mar 23, 2009 at 4:23 AM
Subject: RE: Personal Genome Project Participant Genetic and Trait Dataset
To: Jorel Pi
Cc: Jason Bobe

Jason Bobe and I made the decision. CC and PGP have been in discussions about CC0 for quite some time — See:
http://creativecommons.org/weblog/entry/13304

Thanks,
–George

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